Oak Parker battling ALS announces fundraiser

June 24th, 2016 10:06 AM

By Ken Trainor

Staff writer

Last fall, we ran a story about Oak Park native Sarah Coglianese and how her life has changed since she contracted ALS (amyotrophic lateral sclerosis) at the age of 33 [Living with ALS, News, Oct. 21].

Recently Sarah sent an update in the form of a 5-minute video about her life in San Francisco, which has already been viewed 160,000 times.

Sarah and her team of family and friends is gearing up for another round of fundraising because progress on this currently incurable disease is her only hope.

"We will be doing the #whatwouldyougive fundraiser again this year," Sarah writes. "For those who are not familiar with it, the fundraiser challenges people to step into the life of an ALS patient for a day or just a few hours, giving up their legs, arms, or voice to raise money for, and awareness of, this disease."

The challenge takes place in August. Last year they raised $150,000.

To learn more (and to read Sarah's excellent blog), visit

To read our article from last October, click here.



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  • May Fallon from Illinois (Facebook Verified)

    Posted: July 1st, 2016 4:25 PM

    Reading that a person "contracted ALS" gave me pause as this wording is almost always used to describe an infectious disease, which ALS is not.

  • Bridgett Baron (Facebook Verified)

    Posted: June 24th, 2016 10:56 PM

    Wow...Thanks for posting this, Ken. I look forward to reading Sarah's blog. The video is enough to digest and process for now. And I look forward to being part of this solution. "ALS is not an incurable disease, it's an underfunded disease."

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